Cystic fibrosis social aspects in Ukraine

Abstract

Cystic fibrosis (CF) is a genetically determined pathology. It belongs to the orphan diseases group. CF is an important social problem not only in Ukraine but also all over the world. The main social problems of CF patients in Ukraine are insufficient and late diagnosis of the disease, lack of genetic passport of most patients, severe disease course with psychological problems in the family, lack of access to high-tech treatment algorithms (gene therapy, lung transplantation), short life expectancy and difficult financial position. In recent years, there have been the number of positive changes in the treatment and management of CF patients in Ukraine. Implementation of international standards of treatment and care is the only way to improve the life quality of CF patients.